
Health Crisis - Updated 6-23 7:00pm
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- therock1811
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I got home yesterday around 2pm. I have to take it easy for 2 weeks, no strenuous activity, things like that. No baths, only showers. Which sucks, cause I rather like my baths. Ah well, I'll get through that. It's a small price after this ordeal. Which is worse than I have said, partly because I did not want to scare anyone here worse than I knew the part about the ruptured bladder would have. Fact is, I may have been within 24-36 hours of death had I NOT gone to the hospital when I did (around 6:30pm 6/2)...and I only had a 50/50 shot of making it through that first 72 hours. This was a close call. VERY close...TOO close.
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- HurricaneGirl
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- DaylilyDawn
- S2K Supporter
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- Joined: Sat Jun 21, 2003 10:45 am
- Location: Lakeland, FL
Jeremy,
I completely understand the fear you felt when the Dr.s told you how serious it was. My oldest son faced a similar sittuation in 1999 when his kidney failed. He was born with abnormally small kidneys that worked at half capacity of a normal kidney. So when his kidney failed he went into kidney failure. His remaing kidney continued to produce urine but couldn't filter the toxins that build up in the bloodstream. The toxin level built up and was posioning him until he came within 24 hours of dying in his sleep. The DR.s put him into thehospital and immediately put him on hemodialysis. He was hemodailysis every day while in the hospital. Once discahrged he had to go to the Kidney Clinic 3 times a week until he learned how to do his dialysis by periitonetal dialysis . This involved the membrane that seperates the stomcah and other organs in the abdomen.. He did an exchange 4 times a day. He did this for a year and was given a machine that eliminated the fluid at night while he slept. That freed him from a daily exchange and he gould go 12 hours without an exchange. He had the machine about 6 months when he got the notification to go to the Tampa Hospital for a possible transplant. He was the secondary transplant when he got there and while blood samples were being taken, he was told that he was now the primary. The other person could not be reached by phone or beeper so he or she lost the chance for a new kidney. My son went through the surgery successfully and has not had any major rejection episodes. This Sept. 2 will be 6 years post transplant. I can tell you there is life after this and it can be better for you now. Keep us posted on your recovery.
I completely understand the fear you felt when the Dr.s told you how serious it was. My oldest son faced a similar sittuation in 1999 when his kidney failed. He was born with abnormally small kidneys that worked at half capacity of a normal kidney. So when his kidney failed he went into kidney failure. His remaing kidney continued to produce urine but couldn't filter the toxins that build up in the bloodstream. The toxin level built up and was posioning him until he came within 24 hours of dying in his sleep. The DR.s put him into thehospital and immediately put him on hemodialysis. He was hemodailysis every day while in the hospital. Once discahrged he had to go to the Kidney Clinic 3 times a week until he learned how to do his dialysis by periitonetal dialysis . This involved the membrane that seperates the stomcah and other organs in the abdomen.. He did an exchange 4 times a day. He did this for a year and was given a machine that eliminated the fluid at night while he slept. That freed him from a daily exchange and he gould go 12 hours without an exchange. He had the machine about 6 months when he got the notification to go to the Tampa Hospital for a possible transplant. He was the secondary transplant when he got there and while blood samples were being taken, he was told that he was now the primary. The other person could not be reached by phone or beeper so he or she lost the chance for a new kidney. My son went through the surgery successfully and has not had any major rejection episodes. This Sept. 2 will be 6 years post transplant. I can tell you there is life after this and it can be better for you now. Keep us posted on your recovery.
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- TexasStooge
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- therock1811
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- Joined: Thu May 15, 2003 2:15 pm
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- therock1811
- Category 5
- Posts: 5163
- Age: 39
- Joined: Thu May 15, 2003 2:15 pm
- Location: Kentucky
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I had a follow up this past Wednesday, and the news was not what I really wanted to hear.
According to my doctor (Dr. William Defoor at CCHMC), the ilial chimney which they constructed back in December basically has decayed. We don't know why, but belief is that it was due to the infection. Either way, the only way to really do anything is to do an ileal conduit, which is more surgery. My doctor, however, does not want to do anything for the time being, so the Foley catheter I came home with, will stay.
According to my doctor (Dr. William Defoor at CCHMC), the ilial chimney which they constructed back in December basically has decayed. We don't know why, but belief is that it was due to the infection. Either way, the only way to really do anything is to do an ileal conduit, which is more surgery. My doctor, however, does not want to do anything for the time being, so the Foley catheter I came home with, will stay.
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- Skywatch_NC
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